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Category: disease

Leaning

Leaning

So, here it is. I have prevaricated and procrastinated for long enough. It’s time to tell about that experience. You know, the big one, the one where I wondered if I’d see 2012 through. What a fellowship, What a joy divineLeaning on the everlasting armsWhat a blessedness, what a peace that’s mineLeaning on the everlasting arms This is me in the 2nd week of December, or thereabouts. I suddenly went down with pneumonia in both lungs and went straight into…

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If …

If …

If. If I was well. If I was well I would go swimming with my children every single week. I would tell them stories every night and play games with them every day. I would chase them round the house and dance round the living room to Strictly with them. If. If I was well I would earn money. I would earn enough money to be able to go on adventure holidays abroad. If I was well I would take…

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Line in the Sand

Line in the Sand

I haven’t blogged for a good while. I’d kind of lost my blogging confidence, muttering such thoughts to myself as ‘no one really wants to read your meanderings anyway’ or ‘people are just being nice.’ You know the kind of stuff. So it got longer and longer since I blogged and I got less and less inclined to. Added to that, my faith was taking somewhat of a bashing this year. Looking back, there was always a (wobbly) certainty and…

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Honesty

Honesty

So, after my last blog post here which seemed to resonate with quite a few people (so many thanks, as ever, for all the messages, encouragements, etc etc…) I decided that I would practise what I preached, and be Honest. So when someone, even a random someone I hardly knew, asked how I was, I wouldn’t say ‘fine’ or ‘oh yes, great, you know, well..’ and other fluffy such downright lies. I’d say ‘Not fine’ ‘not OK’ or ‘OK ish…

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Dear Nice Person……

Dear Nice Person……

Dear nice friendly person: No, I don’t feel fine. Thankyou for saying I am looking really well. I know that you are only trying to be kind and upbuilding. Unfortunately it reminds me of the fact that even when I feel sick people think I’m doing well, and therefore I must be putting it on.I know this is not the case, but I think it anyway.I am sorry, nice friendly person, that I am not talking much back to you….

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Today

Today

I’ve put up decorations today and helped the children put up and decorate the Christmas tree. I’m so thankful I’ve got enough spoons today to do this. Last week would have been a different story. Last Saturday I was miserably pondering the possibility of never being able to do anything Christmassy again with my children due to being so low on reserves and breath that it was all I could do to crawl on to the sofa and grumpily read…

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Being (sometimes) beats doing.

Being (sometimes) beats doing.

I’m having a poorly week. Lungs infected again and this time it’s hit me pretty hard. For nearly 4 days I’ve hardly been able to crawl out of bed, though I made it downstairs last night in a somewhat jelly like state. What it did mean is that I couldn’t do anything on the To Do list I’d been stressing over at the end of last week, and had to leave things be. Now, at first, this frustrates me greatly….

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Why I love Brussians

Why I love Brussians

I went to a meet up this weekend with a few people from the website ‘Bronchiectasis R Us’ which was set up a few years ago by the lovely Charlotte as a way for people suffering from this rare disease to connect and share information and support. We’ve been having an annual meet up for a few years now. These guys never cease to amaze me with their zest for life amidst such suffering. You may be thinking these meet…

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Strength and Self Pity

Strength and Self Pity

Yesterday I indulged in a nice little Pity Party, all by myself. Adventure Bloke had come home from an hours run and had rather nice calf definition, if I may say so. But there was me, deciding that it was Not Fair that I could not go out on an hour’s run and have calf definition. Because I have messed up lungs, and because yesterday was a Bad Day. I did get the Adventurous pair to the park after school,…

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