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Category: disability

Unproductive

Unproductive

I’ve been frequenting various author/writing blogs lately in my novel-writing mission, but have found that I feel fairly depressed after browsing too many of them. Now this could merely be due to the fact that they actually procrastinate the very thing they advocate, ie actual, real Writing. Or, it could be something more, something whch seems to strike at the heart of me. These blogs are exhausting. All written by successful people with twenty zillion followers and thousands of perfect…

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If they won’t I will

If they won’t I will

There’s a lot going about on Twitter at the moment about the death figures for those claiming ESA in the past five years. It makes for some fairly scary reading. It’s prompted a  UN inquiry into grave and systematic violations of disabled people’s rights I’m just completing an edit on my first novel. I’ve been a bit reticent about sharing it with people, because it feels all vulnerable to get out there and say ‘I’ve written a book.’ But the…

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Paralympics Meanderings

Paralympics Meanderings

How fabulous are the Paralympics? I love seeing how the athletes have worked so hard and triumphed over such adversity. They are inspirational. It’s quite staggering to see how far some of them have come in their lives and their sport. And – well, they’re fantastic athletes. However, there is something of a backlash amongst the disabled and chronically sick community, especially as regards to one of the Paralympic sponsors, Atos Healthcare. One has to wonder why a company that…

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Those who ‘just get on with it’…

Those who ‘just get on with it’…

So, this phrase has been vexing me somewhat lately. I’m not entirely sure why, but here’s the thing: ‘<insert name here> is so inspirational, you know. She is one of those people who just get on with it, you know, even when she has proper flu. She doesn’t let it get her down.’ And there’s that dreadful ad. Can’t even remember what it is advertising, some overpriced and ineffective cold remedy, I believe. The one that extols the virtues of…

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New Year – New Hopes

New Year – New Hopes

This is me at the beginning of 2012. Not the best start, possibly, to my fortieth year on earth? In some ways, not really. But in others, perhaps I can see it as the best start, because if this lot works well I may feel better than I’ve done in months and months, and that is a hope I am reaching for right now. I may be somewhat naive, I know myself what I am like and how often I…

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The children have it right…

The children have it right…

Watching Children in Need last night with the Adventurous Pair caused me to think upon how children have a natural sense of justice and fairness and a horror at what is blatantly wrong. All through the show I was heading off cries of ‘pleeeeease mummy, please donate again, come on, how can you not’ and various other emotional blackmail-ish types of statements 😉 Some might say that this is because children are easily influenced, but I think it’s due to…

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Benefit Scroungers R Us

Benefit Scroungers R Us

I am seriously worried about the future. Not so much for me, because I am blessed to have the support I have, but for those people suffering from chronic illnesses and disability who are running out of options. You may think I am being somewhat over dramatic here, but in reality, there is a problem, and it is being hidden, and there is a systematic assault on the very people who need protecting most. But the news doesn’t report this….

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Strength and Self Pity

Strength and Self Pity

Yesterday I indulged in a nice little Pity Party, all by myself. Adventure Bloke had come home from an hours run and had rather nice calf definition, if I may say so. But there was me, deciding that it was Not Fair that I could not go out on an hour’s run and have calf definition. Because I have messed up lungs, and because yesterday was a Bad Day. I did get the Adventurous pair to the park after school,…

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What value on life?

What value on life?

I watched the BBC documentary 23 Week Babies the other night and it’s been preying on my mind ever since. In the first case, pondering on the harrowing and unthinkable suffering parents of these incredibly premature babies go through, and endeavouring to imagine what it would be like (impossible to do so, really.) And then there are the dedicated health professionals involved in the process, and the decisions they have to make, decisions that could mean life or death, impossible…

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The Spoon Theory

The Spoon Theory

It is hard to explain what it is like living with illness, especially when you often look so normal (well many friends may disagree on this one 😉 ) This lady who has lupus has produced what is called ‘The Spoon Theory’ which conveys as well as anything can a little of what it can be like. For me, some days I start with very few ‘spoons’ and others have quite a lot, but there is always a limit, and…

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